Though people are passionately discussing health information exchanges and health insurance exchanges today, it is important to recognize that the vision for all Americans to have access to electronic health records (EHRs) by 2014 began in 2004.
At that time, President George W. Bush established the position of National Coordinator for Health Information Technology within the Department of Health and Human Services and laid the foundation for a Nationwide Health Information Network (NHIN). The goals of the NHIN are seamless connectivity and secure exchange of healthcare information nationwide. It is neither a national network nor a bunch of servers run by the federal government. Instead, it is a set of standards and tools developed by a core group with significant experience in building health information exchanges (HIEs).
Federal agencies such as the Department of Defense, the Centers for Disease Control, the Veterans Administration, and the Social Security Administration; states such as Delaware (home to the nation's first statewide health information network), New York, North Carolina, Virginia, and West Virginia; educational institutions such as Indiana University and Wright State University; and private healthcare organizations such as Kaiser Permanente and the Cleveland Clinic were among the initial participants in the NHIN.
Technology to build HIEs, initially developed by federal agencies, was released to the public domain in the form of CONNECT, a free, open-source software solution that lets anyone build HIEs and connect to the NHIN. An organization can build an HIE to communicate between internal EHR systems, join an HIE, or communicate with EHR systems of other organizations.
Since 2010, significant work on state HIEs has been done as a result of financial incentives authorized by the HITECH Act of 2009. Thirty-four states and the District of Columbia received first-round funding to build HIEs. Some state HIEs, including Maryland's, have connected all hospitals and progressed to the second stage of funding for operations, but some early innovator states actually returned the federal money and held back work on the exchanges.
Since the same acronym has often been used for both types of exchanges, health information exchanges can be confused with health insurance exchanges. Perhaps a new acronym for the insurance version -- HIEX -- will solve this problem. This type of exchange, a requirement of the Affordable Care Act (a.k.a. Obamacare), is designed to allow anyone to compare options and enable them to buy affordable health insurance. The concept is very similar to an electronic securities trading organization, which democratized stock trading and allowed small investors and individuals to get quotes and buy stocks and other securities at affordable trading fees.
HIEXes must be functional in states by 2014, and states must make their intentions known by Dec. 14, 2012. Several states have received funding to build state-run HIEXes. But bills to establish these exchanges have failed in many state legislatures. Other states, such as South Carolina, are opting to use the default federal government-run HIEX. Though the uneven implementation has raised concerns, the Obama administration has said insurance exchanges will be functional in all 50 states and DC by 2014. Perhaps another benefit of several federally run HIEXes will be a speedier path to a nationwide Health Information Network.
Mansur Hasib has served in CIO/CISO and other leadership roles in the public, private, and education sectors.
Open standards are important with healthcare systems. The robustness of these systems are literally life-and-death matters; it's important that experts can see the code and evaluate whether it works as it should.
You make excellent points, Mitch, regarding the politics. Functionally, yes, the exchanges were started in advance of Obamacare, BUT most people ARE associating it with Obamacare. So the reality is that it will have a political flavor and those opposed will definitely be slow or resistant to joining the health networks.
You also make an excellent point, again recognizing the politics, that the full development of networks is not going to succeed until the physician/consumer acceptance is achieved. Most of the efforts now are still top-down and there are a lot of smaller medical groups and physicians who have not bought into the concept and don't see the need.
It's a real shame politics is involved in healthcare. It's also a shame money is involved. But since that's life in the big city (and the small village!), I think it's important that healthcare organizations, their IT departments, and government agencies -- along with insurance and all other stakeholders -- move as quickly yet safely as possible toward secure networks that can share information.
My orthopedist loves the EHR his practice uses; it's the one used by one of our three local hospital chains, and it allows him to look-up patients' records via his smartphone or iPad when they go to the ER and he gets a call. In the past, he told me, he either had to go to his office or - more likely - send one of his assistants, which cost him (then the patient and/or insurer) money to review the patient's chart for medications, history, etc. Now he looks them up on-the-fly, no matter where he is. Dr. O credits this with saving him countless hours and dollars since his office implemented it a year or two ago.
@Dhagar - I do believe the HIEXes will be formed. The HIEs are running well in many states and have already connected many silos. The promise of data for the betterment of public health outcomes is great.
@Kim - I am not sure I understand the question. We establish standards of practice and we issue certificates and licenses. Not sure why we would not establish standards in IT and information security and privacy.
@Alison - many HIEs started organically but if you will have networks communicate, you need standards and that is where collaboration and standards development was facilitated by the US government and incentives provided to soften the initial investments.
No one can argue with the value of exchanging healthcare information electronically. But is the current approach too centralized, too top-down, too rigid?
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